Hotel Room Appeal submitted to FEMA. 12-29-12

FEMA
1-800-621-3362. FAX. 1-800-827-8112
DisasterAssistance.gov

Fema I.D. No. 41-1371304
Subject: URGENT. Long-term Housing
Medical Condition: Spinal Cord Injury with Severe Autonomic Dysfunction, Cervical Myelopathy, Costochondritis, Intercostal Neuritis, Occipital Neuralgia, L-S Radiculopathy, Multiple Disc Lesions, Post Traumatic Neuropathy. Pulmonary Fibrosis.

To Whom it may Concern:

On October 29, 2012, i was a permanently disabled individual, severely limited by symptoms of a spinal cord injury sustained 35 years ago, fully functioning within the closed environment of my home, set up to accommodate my specific physical needs. I was in intractable pain. I used an electric wheelchair, oxygen, a service dog, and was in a hospital bed 80-90 % of the day. I was an ADA/Disability Advocate of 35 years, who has facilitated amazing changes for disabled individuals.

As you can imagine, the sequence of events since the sewage surge hit my home have caused me great physical pain and functional disruption. I slept in my car for 10 days. Then I was able to get into the Best Western at Bar Harbor on Sunrise Highway in Massapequa Park, NY. I have a room with a bathroom and parking outside the door. My oxygen is set up here and my physical therapist visits twice a week for 2 hours each session. I am warm and comfortable. My home was set up like this. I cannot function in an apartment.

I have been told by numerous persons within the system that Fema has the capability to allow me to stay here at their expense, because of my special needs. I provided two medical reports to the Fema Inspector. If these are not in my file I will fax them to you.

I am asking Fema to allow me to stay at this hotel, where I am comfortable and my needs are being met, until my severely damaged home is restored and livable. Please take this request seriously, because there is no way I can fit into the housing standards set up for able-bodied individuals pertinent to Disaster and Recovery. Be assured that I am highly motivated to recover the level of comfort, functioning and productivity I enjoyed prior to October 29, 2012. With your validation of and cooperation with my special needs, I feel that will happen.

Thank you sincerely for your consideration and anticipated help.
Sincerely,
Wendy Wagner

********FEMA consistently refused to answer this Appeal, although I was told repeatedly that it was being considered.

Letter to President Obama. 12-18-12

Dear President Obama,

I sincerely hope that you will read this letter personally and realize there are faces on the victims of the flood surge of Hurricane Sandy and that our needs are not being met.

On October 28, 2012, I was a profoundly disabled woman living alone with my service dog, in a neighborhood in Seaford, Long Island, not on the water or even close by. I have Spinal Cord Injury with Severe Autonomic Dysfunction (which means it affects all involuntary functions, such as heartbeat, breathing, swallowing, temperature control, etc.), Cervical Myelopathy, Occipital Neuralgia, Costochondritis, etc. etc. 3 lobes of my lungs are partially collapsed. I am in a hospital bed 80 percent of the day because I can only sit up for 2 hours and can never lie down. I use an electric wheelchair and oxygen concentrator. I am in intractable pain 24/7. I have had 27 malignant melanoma.

Despite all this, I have built a life of incredible advocacy and consultancy for disabled people that has spanned 35 years and allowed many many thousands of people to live more accessible and equitable lives. All of my files were destroyed by the sewage surge that tore all of my furniture, belongings and $50,000 in medical equipment from my home on October 29, and made it unlivable and hazardous to enter. I lost everything. But what I lost most was a comfortable nest in which I could function. I lost control of my own life.

I stand before you destitute, with nothing but my good works in my arms, stumbling about in a Disaster Recovery Program that has no place or compassion for Disabled Individuals, and I beg you to see me and to listen to us. We are being dismissed!

WHAT I NEED IS INTERVENTION. For 10 days after the flood I, with SCI, slept on the floor or in my car. I lived on a half a roll a day and a half bottle of water. Food, gas, and housing were non-existent.
After 10 days I found a hotel in my area, Best Western at Bar Harbor in Massapequa, NY. They have agree to let me stay until December 9, 2012, after which I have no place to go. The problem is, that while I am Approved for Hotel Assistance, Fema said this hotel is not on their List. The list they are using seemed to be from a former hurricane, and the woman was trying to send me to locations 2 hours away. She finally settled on two, Farmingdale, 45 minutes away and Freeport Motor Lodge, on the water in the devastated Flood Zone. I can only sit up for 2 hours and need a hotel close by.

I am located presently, after some effort. Housing and hotels are extremely scarce. I cannot go to a shelter and I can provide medical documentation for this. My needs are being met here. I am near people and medical personnel who know my rare medical condition. And I am close to the home where I need to take care of insurance and other business. No insurance has visited my home yet.

Fema has not said they will pay for this facility. My out-of-state son has it on his credit card but cannot much longer. The daily cost that Fema is allowing for hotel assistance is $143 with taxes, This hotel is only $112. I AM ASKING YOU, President Obama, TO PLEASE HELP ME TO GET FEMA TO APPROVE PAYMENT FOR THIS PARTICULAR HOTEL. PLease help!

It looks like although I had $400,000 in insurance coverage on my home, because it was a flood I am going to get only $14,000 for my home, furniture and all its contents. Devastating. I find myself wishing I had died in the hospital bed that burned up in the storm surge. I am in such physical pain. Land rapers are already trying to buy up our devastated homes for the land. I find myself wondering how in my wonderful America, insurance companies could be so overindulged and homeowners could be so victimized, first by the storm and then by the system. I have been living below the poverty level on $10,000 from workers compensation for 35 years, and there is no way i can rebuild my home without help.

I sincerely appreciate your anticipated help. I have experienced no help or compassion in the systems. God bless you. wendy wagner, 2401 South Cedar Street, Seaford, NY 11783

***THIS LETTER NEVER RECEIVED ANY RESPONSE.